For the last few weeks I have been connecting with other women with endometriosis…also called EndoSisters…to broaden my understanding of how endometriosis affects our lives. It is really easy for me to fall back on my own experience, so I wanted to hear what other ladies were experiencing as their biggest physical and emotional challenges with the disease.
By simply asking for volunteers via the RWL Facebook Page and Private Facebook Group, I spoke with over a dozen ladies in one week. I was touched by everyone’s willingness to share, and moved by the tremendous amount of pain and struggle each woman has been through. I know I say it all the time, that every woman’s story is different, but every woman I talked to experienced physical pain differently and had completely different emotional struggles.
There was one overwhelming trend within all my conversations…the feeling that no one around me understands, and I feel alone. There are several ways to deal with this, but for today, we are discussing the Power of Connecting with EndoSisters. There will be a post on “tips for supporting a woman with endometriosis” later this month. Reaching out and finding a group that makes sense for you is so very important. Connecting with women who are supportive and understanding allows us to figure out our own path and methods for dealing with the disease. It is a basic human need to feel connected. Loss of connection equates to loss of belonging and leads to shame.
I am excited for this month, and the coming weeks. First, today I am traveling to Washington D.C. to be a part of the Million Women March for Endometriosis. I couldn’t be more excited to be surrounded by fellow EndoSisters. To hear their stories, and to be connected to thousands of women from around the country. Second, to close out Endometriosis Awareness Month I will be highlighting 5 amazing women who will be sharing their story, how they found their voice, and their path to wellness.
Don’t miss out! If you’ve ever felt frustrated or stuck, you’re in the right place. Start with finding what inspires you!